Parkinson's Association of San Diego, Inc.
8555 Aero Dr.
Suite 308
San Diego CA 92123-1746
Contact Information
Address 8555 Aero Dr.
Suite 308
San Diego, CA 921231746
Telephone (858) 273-6763
Fax 858 273-6764
E-mail contactus@parkinsonsassociation.org
At A Glance
Former Names
San Diego Parkinson Corportation
Parkinson's Disease Association of San Diego
Year of Incorporation 1989
Financial Summary
 
 
Projected Revenue $1,278,230.00
Projected Expenses $1,278,230.00
Projected Annual Revenue $1,278,230.00 (2014)
Description
Currently the Association sponsors 22 support groups that meet in various locations throghout the county.  These group provide needed information and emotional support to those challenged by Parkisnon's as well as their carepartners
Budget 35,000
Category Human Services Services for Specific Populations
Population Served Physically Disabled nec, Adults, Aging/Elderly/Senior Citizens
Short Term Success
Each month more than 250 people participate in Parkionson's support group activities throughout the county
Long term Success
This program has been meeting the needs of the families for more than 29 years.  Over this period the number of groups has grown from two the twenty two. 
Program Success Monitored By
They keep coming back.
Examples of Program Success
The number served each month has grown from 15 to over 250.
Description
A program whereby the Association helps to underwrite the costs of in-home respite that is provided by licensed, bonded and trained caregivers who work for In Home health agencies.
Budget 110,000
Category Human Services Personal Social Services
Population Served Physically Disabled nec, Aging/Elderly/Senior Citizens, Adults
Short Term Success
Our outcome measures and the research done by social scientists indicate that this type of services allows a person to maintain a better quality of life, get better care and provides relief for the caregiver
Long term Success
This program has grown over the past nine years due to the increased need for this service and the availability of financial resources.  In our fiscal year 08-09 over 8,300 hours of supported service was provided to a total of 53 families. 
Program Success Monitored By
Outcome measures sent to each family that participate, continues to indicate the value of this program.  These are reviewed by the Program Committee on an ongoing basis.
Examples of Program Success
There is a perpetual waiting list of families which want to participate in the program.
Description
The Tremble Clefs consists of two groups in the county.  These groups provide vocal therapy to counter one of the progressive problems that people with Parkinson's face, namely a weakening and eventual loss of ability to speak.  These groups provide not only therapy, but a support system.
Budget 75,000
Category Human Services Services for Individuals with Disabilities
Population Served Physically Disabled nec, Adults, Aging/Elderly/Senior Citizens
Short Term Success
Clinical research has shown that this type of therapy helps to maintain a patients vocal ability and the group activities continue to provide opportunties for the patient to contribute back to the community through the various performances that the groups schedules.
Long term Success
This program continues to grow from it's inception in San Diego 8 years ago.  It has grown from one group of 12 to 15 members to almost 70 individuals who meet weekly in two locations in the county.
 
Not only is this a support system, but clinical research has shown that this type of therapy actually help stay off the advances of the decline in vocal ability.
Program Success Monitored By
Outcome measures are sent to the participants and evaluated by the Program Committee
Examples of Program Success
The group in our 08-09 fiscal year provided 78 performances at senior centers, assisted living facilites and other venues.
Description
This program consists of several parts including: providing literature and answering callers questions, staging a Good Start Workshop to provide infromation to newly diagnosed, and a Financial & Legal Wellbeing Workshop series to provide information on financial and legal issues that  invariably confront Parkinson's famlies.  It also includes our comprehensive website where information in English and Spanish can be found.  An additional component is our Latino Outreach which endeavors to provide needed information to the large Hispanic population in our community.
Budget 175,000
Category Human Services Family Preservation
Population Served Physically Disabled nec, Aging/Elderly/Senior Citizens, Adults
Short Term Success
People have immediate access to the information and counseling they need to help maintain their quality of life
Long term Success
This program provides information to thousands of individuals each year.  This is in the form of printed literature and electronic messaging.  It also includes speaking engagement and health fairs.  Our website along had over 62,165 visitors last year.  We also provided to 3,000 individuals electronic PD Alerts and Mind Body Wellness emails.  Our newsletter the Parkinson Post had a distribution of 69,400 last year.
Program Success Monitored By
Outcome measurement forms are provided to those who utilize the various services provided in this category.
Examples of Program Success
Outcome measures in each of these areas are evaluated by the staff and Program committee and any adjustments needed are implemented.  All the program components have annually received high marks.
Description
People with Parkinson's are often affected by depression and anxiety, as are their family members and caregivers. The Parkinson’s Association's therapeutic services specialize in treating people affected by neurodegenerative disorders and are designed to help persons with Parkinson’s and their care-partners learn strategies for navigating the personal challenges that can accompany the condition.
Budget 300,000
Category Mental Health, Substance Abuse Programs, General/other Specialized Counseling
Population Served Aging, Elderly, Senior Citizens, ,
Short Term Success

In its inaugural year, the program has provided over 750 hours of individual, couples, family, and group counseling to clients. The program has served over 100 clients. The counseling hours provided by this program are expected to increase by at least 50% in the second year of operation. The number of clients is expected to increase by approximately 30% in the coming year.

Long term Success

The program will bring mental and emotional health concerns to the forefront of importance to be dealt with along with physical health concerns in the Southern California Parkinson’s Community. The program will de-stigmatize the depression, anxiety, changes in cognition and other mental health concerns that accompany having Parkinson’s disease and/or caring for a loved one with Parkinson’s Disease. The program will reach and treat the hundreds of underreported and under recognized cases of depression and anxiety in this community and benefit the health of hundreds of Parkinsonians and their care partners. The program will provide services to underserved sections of the Parkinson’s population, including clients who are unable to leave their home easily and require home counseling and monolingual Spanish speaking persons and families.

Program Success Monitored By

Interns and trainees in the Counseling program use surveys to identify client’s presenting issues, track progress on those presenting issues, and to track overall client progress in therapy. These surveys are collected and statistics about program success can be compiled from responses to these surveys. These surveys provide ways to periodically review treatment goals and progress and obtain feedback about the services provided.

Examples of Program Success
The program is in it's initial phase.
Statements
Mission Statement The Parkinson's Association of San Diego improves quality of life for those affected by Parkinson's through education, family services and suppport of promising research.
Background Statement
Incorporated in 1989 to serve the San Diego community with programs and services for Parkinson’s families and related professionals.  Grew budget from $150,000 per year to a million dollars. During the past 5 years we have increased our program offerings from 7 to 16 and expanded our support group network to 18 groups. In 2013 we began offering therapeutic services through our Clinical Counseling program.
Impact Statement
Past Year Impact

1. Served more patients and families then in any previous year with special educational and family programs.

2. Added a clinical counseling program for people with Parkinson's and their families, providing individual, family and group sessions as the cornerstone of the new Minds and Motion Health Services program.

3. Produced the first quarterly magazine for the Parkinson's community, Parkinsonian.org, highlighting ways to live well, national research and information for caregivers.

Goals for Current Year

1. Increase our counseling services to reach a greater portion of the population living with Parkinson's or other neurological conditions.

2. Expand the Minds and Motion program to include the availability of physical and occupational therapy in a non-medical setting.

3. Provide the unique programs and services of the Parkinson's Association to a larger geographic region.
Needs Statement
  1. Funding for support of 16 patient and family education programs and services ($100,000)
  2. Support for the In-Home Respite program to increase the number of families served by this vital service ($75,000)
  3. Funds for equipment to launch a physical therapy and training program for people with Parkinson’s ($50,000)
  4. New computers and phone system ($20,000)
  5. Funds to help support staff and training & recognition of volunteers and involvement in the community outreach. ($3,000)
CEO/Executive Director Statement

PASD is the only non profit organization in San Diego County that is solely dedicated to assisting those with idiopathic Parkinson's and Parkinson Plus families.  The agency serves the entire county with a variety of direct service and educational programs, in addition to a comprehensive website, quarterly magazine and email and social media communication. In 2013, we began providing clinical counseling for people with Parkinson's and their families, as well as those with other neurlogical conditions, and caregivers referred to us through our partnership with the Southern Caregiver Resource Center.

Board Chair Statement

I am Dr. Rick Brydges and I currently serve as the President of the Board of Directors of the Parkinson’s Association of San Diego. After graduating from the United States Naval Academy, I trained as an Attach Pilot and flew the A-7 Corsair during his service in Vietnam. Following the direction of the Commander and Chief, my most memorable moment was landing my plane on a carrier at night after my first combat mission, and while walking across the flight deck, I reflected, “…there by the grace of God go I.” After serving as Chief of Staff Naval Ocean Systems Command (NOSC), I served as Commander Naval Aviation Maintenance Training Group Pacific charged with the oversight of six training sites that supported the Pacific Fleet Aviation Readiness. As part of a research team, Total Quality Leadership (TQL) was implemented throughout the Navy. I earned a MS from the Naval Post Graduate School at Monterey, a MBA from the University of West Florida, and a Doctorate in Leadership Studies, from the University of San Diego.

As a second career, I consulted with organizations and taught college classes in the areas of organizational development (OD) interventions, strategic planning, collaborative leadership and leadership coaching and Total Quality Management (TQM). I presented at the International Leadership Association, the Futures Society, and the Academy of Management. As part of a team, I was instrumental in the emergence of a democratic revolution in a developing country in the South Pacific that led to their first democratic elections. I currently serves as a founder of the Institute for the Advancement of Leadership.

Nineteen years ago, reliving my days as an athlete, I was running on the beach and suddenly fell, feeling pain in my left arm. The neurologist I saw diagnosed me with Parkinson’s disease. The first reflection I had was “God has a plan for me, I have put myself in his hands before and I will do so now. I pray that He will give me the courage to live the reminder of my life with graciousness and to be blessed with the support of my loving family, there by the grace of God go I.

The Parkinson’s Association of San Diego has provided me and my family with needed resources and support. I am proud to serve as the President of the Board of Directors to help steer the direction of the organization to ensure that other families like mine will have access to the information, programs and services that can help them face a diagnosis like Parkinson’s.

Service Categories
Family Services
Funding Raising & Fund Distribution
Counseling
Areas of Service
Areas Served
Areas
CA - San Diego County All
CA
While our primary service area is San Diego County, we also provide resources to famlies in Riverside and Imperial Counties.  We are in the process of expanding our programs and services to the greater Los Angeles area.
Comments
CEO Comments
We exist to serve the Parkinson's community in the greater San Diego area.  If you know of someone who might benefit from our services, please ask them to contact us.
Board Chair Statement

I am Dr. Rick Brydges and I currently serve as the President of the Board of Directors of the Parkinson’s Association of San Diego. After graduating from the United States Naval Academy, I trained as an Attach Pilot and flew the A-7 Corsair during his service in Vietnam. Following the direction of the Commander and Chief, my most memorable moment was landing my plane on a carrier at night after my first combat mission, and while walking across the flight deck, I reflected, “…there by the grace of God go I.” After serving as Chief of Staff Naval Ocean Systems Command (NOSC), I served as Commander Naval Aviation Maintenance Training Group Pacific charged with the oversight of six training sites that supported the Pacific Fleet Aviation Readiness. As part of a research team, Total Quality Leadership (TQL) was implemented throughout the Navy. I earned a MS from the Naval Post Graduate School at Monterey, a MBA from the University of West Florida, and a Doctorate in Leadership Studies, from the University of San Diego.

As a second career, I consulted with organizations and taught college classes in the areas of organizational development (OD) interventions, strategic planning, collaborative leadership and leadership coaching and Total Quality Management (TQM). I presented at the International Leadership Association, the Futures Society, and the Academy of Management. As part of a team, I was instrumental in the emergence of a democratic revolution in a developing country in the South Pacific that led to their first democratic elections. I currently serves as a founder of the Institute for the Advancement of Leadership.

Nineteen years ago, reliving my days as an athlete, I was running on the beach and suddenly fell, feeling pain in my left arm. The neurologist I saw diagnosed me with Parkinson’s disease. The first reflection I had was “God has a plan for me, I have put myself in his hands before and I will do so now. I pray that He will give me the courage to live the reminder of my life with graciousness and to be blessed with the support of my loving family, there by the grace of God go I.

The Parkinson’s Association of San Diego has provided me and my family with needed resources and support. I am proud to serve as the President of the Board of Directors to help steer the direction of the organization to ensure that other families like mine will have access to the information, programs and services that can help them face a diagnosis like Parkinson’s.

Plans & Policies
Organization has a Fundraising Plan? Yes
Organization has a Strategic Plan? Yes
Years Strategic Plan Considers 3
Date Strategic Plan Adopted 2008
Management Succession Plan? Yes
Organization Policy and Procedures Yes
Nondiscrimination Policy Yes
Whistleblower Policy Yes
Document Destruction Policy Yes
Directors and Officers Insurance Policy Yes
Government Licenses
Is your organization licensed by the Government?
Board Chair
Board Chair Richard Brydges Phd, Capt. USN Retired
Term May 2013 to May 2015
Email rbrydges@cox.net
Board Members
NameAffiliationStatus
Thelma Balbes
Kathy Bruyere CAPT. USN Retired
Richard Brydges Ph.D., Capt., USN (Ret)
Tony Carchedi
Charles Carey CAPT, USN Retired
Lester Cohen
Harry Coplan
Thomas Davidson Voting
Jack Feehan
Ed Fitzpatrick
Sherrie Gould NP
David Higgins PhD
Gail King
Irene Litvan MD
Patrick LoSasso
Patrick McDonnell MedtronicVoting
Rosemarie Rohatgi DDSVoting
Carole Sachs Comfort KeepersVoting
Michelle Schreiner
Board Demographics - Ethnicity
African American/Black 0
Asian American/Pacific Islander 0
Caucasian 18
Hispanic/Latino 0
Native American/American Indian 0
Other 1 Indian
Board Demographics - Gender
Male 11
Female 8
Unspecified 0
Governance
Board Term Lengths 2
Board Term Limits 3
Board Meeting Attendance % 60%
Written Board Selection Criteria? Yes
Written Conflict of Interest Policy? Yes
Percentage Making Monetary Contributions 100%
Percentage Making In-Kind Contributions 100%
Constituency Includes Client Representation Yes
Number of Full Board Meetings Annually 6
Standing Committees
Board Development / Board Orientation
Development / Fund Development / Fund Raising / Grant Writing / Major Gifts
Program / Program Planning
Special Events (Golf Tournament, Walk / Run, Silent Auction, Dinner / Gala)
Investment
Finance
Advisory Board / Advisory Council
Communications / Promotion / Publicity / Public Relations
Comments
CEO Comments The organization has instituted a number of committees to help with the implementation of the objectives of the strategic plan as well as to give voice to a number of volunteers, Board members and  individuals who have Parkinson's.  By integrating individuals into our committee structure, we are able to keep focused on the very purpose for our exisetnce and continue to press forward wtih our mission.
Executive Director/CEO
Executive Director Jerry Henberger
Term Start Oct 2012
Email jerry.henberger@parkinsonsassociation.org
Compensation 105,000
Experience Jerry Henberger’s strong experience in healthcare, philanthropy and business management has anchored The Parkinson's Association's growth while expanding service to Southern California's Parkinson's communities. Jerry has served in executive positions with his own company, with Big Brothers Big Sisters of Orange County, and with the Scripps Health Foundation. His first company was recognized as one of the fastest growing companies in the United States with national awards from IBM and 3M. Jerry’s focus now is to support promising research for Parkinson’s while providing meaningful health care services to the Parkinson’s community.
Former CEOs
NameTerm
Mrs Mary Mowry June 1989 -
Senior Staff
Title Director of Family Services & Educational Programs
Experience/Biography
Staff
Full Time Staff 12
Part Time Staff 2
Volunteers 150
Contractors 4
Retention Rate 90%
Fiscal Year
Fiscal Year Start Sept 01 2013
Fiscal Year End Aug 31 2014
Projected Revenue $1,278,230.00
Projected Expenses $1,278,230.00
Endowment Value $9,000.00
Spending Policy N/A
IRS Letter of Exemption
IRS Letter of Determination of Tax Exempt Status
IRS Letter
Form 990s
9902012
9902011
9902010
9902009
9902008
9902007
9902006
Detail Financials
Expense Allocation
Fiscal Year201320122011
Program Expense$890,984$1,016,536--
Administration Expense$97,392$50,402--
Fundraising Expense$181,111$96,764--
Payments to Affiliates$0$0--
Total Revenue/Total Expenses1.020.75--
Program Expense/Total Expenses76%87%--
Fundraising Expense/Contributed Revenue16%12%--
Assets and Liabilities
Fiscal Year201320122011
Total Assets$1,092,277$928,638--
Current Assets$463,248$280,812--
Long-Term Liabilities$0$0--
Current Liabilities$136,185$40,611--
Total Net Assets$956,092$888,027--
Short Term Solvency
Fiscal Year201320122011
Current Ratio: Current Assets/Current Liabilities3.406.91--
Long Term Solvency
Fiscal Year201320122011
Long-Term Liabilities/Total Assets0%0%--
Top Funding Sources
Fiscal Year201320122011
Top Funding Source & Dollar Amount -- ----
Second Highest Funding Source & Dollar Amount -- ----
Third Highest Funding Source & Dollar Amount -- ----
Capital Campaign
Currently in a Capital Campaign? No
Capital Campaign Anticipated in Next 5 Years? Yes
Comments
Organization Comments This year is presenting us with many new opportunities. In March 2013 we began a clinical counseling program for those living with neurological conditions and their families utilizing an intern program. We are now in the process of expanding these programs to include licensed professionals, opening the opportunity for us to bill insurance companies for their service hours. We have increased our dedication to fundraising for research through the grassroots efforts of the Summit4StemCell program, and anticipate an increase in funds raised in this area. We have started a quarterly magazine, Parkinsonian.org, which has the potential to increase revenues through advertising and subscription sales. Our challenges lie in best utilizing these opportunities to enhance the lives of those living with Parkinson’s and their family members.

Foundation Comments 2010 financial summary data is based on audited financials.  Total revenue has been adjusted to not include net assets released from restrictions.
Additional Documents
Nonprofit Parkinson's Association of San Diego, Inc.
Address 8555 Aero Dr.
Suite 308
San Diego, CA 921231746
Primary Phone 858 273-6763
CEO/Executive Director Jerry Henberger
Board Chair Richard Brydges Phd, Capt. USN Retired
Year of Incorporation 1989
Former Names
San Diego Parkinson Corportation
Parkinson's Disease Association of San Diego

 

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